With ResearchKit study, Duke aims to map many variances in multiple sclerosis
Duke University has launched a new Apple ResearchKit study, the MS Mosaic Study, aimed at using big data and patient insights to improve medical understanding of multiple sclerosis. Dr. Lee Hartsell, assistant professor of neurology at Duke University Medical Center, spoke about the new study -- and some of the challenges involved in launching it -- at the Digital and Personal Connect preconference event at HIMSS18 last week.
"A patient [with MS] is experiencing any combination of 21 non-specific symptoms, whose severity will fluctuate due to unpredictable bouts of inflammation and due to unmeasured changes in biorhythms, body temperature, activity levels, sun exposure, diet, emotional state, and the side effects from any of 15 different disease modifiers, four different relapse modifiers, and 88 different symptom modifiers," Hartsell said. "These experiences can’t be summarized during a 10-minute visit. We try, and because we’ve tried, MS has become the second most expensive chronic disease to manage in the United States. It’s not significantly data-driven."
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